Logan* was born with hydrocephalus (fluid build-up within the brain) and his medical team anticipated an extremely short life expectancy. However, Logan was fortunate to make a stable recovery and a cohesive multi-disciplinary approach was established to meet his needs and enable him to continue to live with his family in a remote community. A Carpentaria Occupational Therapist, a Physiotherapist from Nhulunbuy and the community health care team were engaged to provide ongoing support.
Logan and his family accessed loan equipment from Carpentaria’s Paediatric Equipment Program (CPEP) to manage their immediate needs whilst in community. This facilitated safe bath, meal and play time in between therapist visits. Access to the equipment allowed Logan’s family to become confident using each piece, and to see how these items benefited Logan, and the trialled equipment was purchased for continued use.
On a recent visit to Darwin, Logan and his family trialled additional CPEP equipment to meet his changing needs. As Logan grows, larger items will be ordered and equipment that is no longer suitable will be returned to CPEP to support another child’s development.
*Name changed